Olivia’s Story

Julie and Peter Ostiguy are the proud parents of Olivia.  At 22 weeks pregnant, Julie and Peter were told by doctors that Olivia had a complex heart defect called Hypoplastic Left Heart Syndrome (HLHS), essentially leaving her with half a heart.  Cardiologists at Children’s Hospital Boston gave her a 90% chance of survival.
While performing the first of three scheduled surgeries soon after she was born, doctors discovered that Olivia’s heart was much worse than anticipated and she had an inoperable coronary artery defect.  She came out of surgery at 6 days old on life support. Olivia passed away while awaiting a heart transplant.  She was just 13 days old.

Soon after Olivia lost her fight, Julie and Peter decided to start Olivia’s Heart Fund to help others in their battle with Congenital Heart Defects (CHD) through funding vital CHD research.  They are continuing Olivia’s fight so that no child’s battle is ever in vain.